Events

Xeroderma Pigmentosum Month

XP Grupo Luz de Esperanza, Inc. (XP Light of Hope Group) is proud to announce the establishing of the month of September as Xeroderma Pigmentosum Month.

Waterford, CT, November, 22, 2014

Beginning in September 2015, we will sponsor and recognize Xeroderma Pigmentosum Month (TM).

This observance is being established to bring awareness to Xeroderma Pigmentosum, a rare genetic, inherited disease. The month will be used to sponsor local, regional, national, and international events such as panel discussions, goods donations, fundraising, medical conferences, night camp activities, entertainment, and much more.  Also, we hope to develop the support of special guests who will “wow” you!

The organization XP Grupo Luz de Esperanza, Inc. (XP Light of Hope Group) was established in 2012 as a 501(c)3 non-profit. We work to improve the quality of life of those diagnosed with Xeroderma Pigmentosum, and their families and other persons who care about them.

Return and visit our website again to stay current with the latest updates. For more information, contact:

XP Grupo Luz de Esperanza, Inc. (XP Light of Hope Group) (860) 333-8715

info@xpgrupoluzdeesperanza.org www.xpgrupoluzdeesperanza.org