XP Grupo Luz de Ezperanza
Photo by Alvaro Mata/Diario Las Americas
President and Founder of the XP Grupo Luz de Esperanza
The organization XP Grupo Luz de Esperanza was established for the betterment of those individuals affected by Xeroderma Pigmentosum and their families.
- Fátima Pérez
Primer Impacto of Univision
Fatima Pérez shared her story with Natalia Cruz from Primer Impacto of Univision.
Despierta América of Univision
Fatima Pérez was on Despierta America of Univision, talking about Xeroderma Pigmentosum with Dr. Juan Rivera.
Al Rojo Vivo of Telemundo
Fatima Pérez talked about Xeroderma Pigmentosum with María Celeste on Al Rojo Vivo of Telemundo.
My name is Jimena Mina. I am originally from Colombia. I spent the first 13 years of my life living in San Antonio Rio Yurumangu, Colombia, a rural area of the Buenaventura district near the…
My name is Charina Marte. I live in La Romana, Dominican Republic. I was diagnosed with the rare skin disease of Xeroderma Pigmentosum when I was six months of age. I am 21 years old…
The Story of Fernando
Fernando Javier Núñez Baltazar was 8 years old when his mother found us. Fernando has developed small tumors and his vision has deteriorated due to Xeroderma Pigmentosum. He was only a year old when a…