In The News
Fátima on Primer Impacto
Natalia Cruz met Fatima Perez a little more than a decade ago in Connecticut. Fatima talked about trying to survive a strange disease, a disease that makes her vulnerable to the light of the sun. The years have passed, and they met again in Miami. Today Fatima is an activist who is seeking for ways to help those that are affected by this disease.
Fátima on Despierta América
Dr. Juan Rivera
Dr. Juan Rivera talked with Fátima, who lives with a rare disease called Xeroderma Pigmentosum. This disease doesn't let her be exposed to sunlight because it would burn her skin and cause other damages immediately.
Fátima on Al Rojo Vivo
Maria Celeste Arrarás
Fatima is a Dominican woman diagnosed with Xeroderma Pigmentosum. She is blind because of this disease. She contacted a child who has the same disease to help him at home in Venezuela,.
Children Of The Night: A New Awakening
Fátima in "El Show de Analeh"
Fátima on News 8 WTNH
Special Books by Special Kids
Fatima Pérez shared her story with the popular host of You Tube Channel's "Special Books by Special Kids".
Overcoming Life Challenges
Fatima Perez learns to cope with rare disease
By Julie Wernau
Times Staff Writer, Waterford Times
Waterford –“Fatima has the strength of Kateri,” said Cheryl Noga, owner of Yah-Ta-Hey art gallery in New London. Noga was referring to Kateri Tekakwitha, a blind woman in the 17th century known as the Lily of the Mohawks who was orphaned and disfigured after smallpox attacked her family.
In a home video, Fatima Perez is cocooned in five pounds of clothing. Undergarments, a heavy black cloak, hat, visor and poncho engulf her body covering her face, her eyes, and her scalp. Lastly, she slips into a pair of heavy black gloves as her friend, Jaely Leon, accompanies the woman who is blind into her apartment building elevator in Waterford. Perez was born with Xeroderma Pigmentosum (XP), a rare genetic disease marked by the body's inability to repair DNA damage from ultraviolet rays.
Skin Disease Gives Waterford Woman A Mission
She aims to spread awareness to Spanish speakers
By Judy Benson
Day Staff Writer
Waterford -Fatima Perez’s biggest challenge is also her main passion, and thanks to her persistence, her story will soon be told in her native country, the Dominican Republic.
Perez, 45, has a rare genetic disorder called Xeroderma Pigmentosum that leaves her highly sensitive to ultraviolet light and susceptible to skin cancer and other effects. As a child growing up on the tropical island, where few people – including her parents – understood the disease, she spent far too many hours in the sun, unprotected, and ultimately lost most of her eyesight and incurred severe skin damage.
A Light In The Middle Of The Shadow
Dominican Woman Shines Light In The Middle Of The Darkness
By Camila Mendoza
Writer / Anchor / Blogger
Publication - Diario Las Americas
Edition - New York, Thursday, March 30, 2017
Photographer: Alvaro Mata
Fatima Perez promotes self-improvement through XP Grupo Luz de Esperanza (XP Light of Hope Group). This organization seeks to raise awareness about the rare, strange disease that she lives with.
Fatima Perez dresses every morning with almost 5 pounds of clothes. No matter the climate conditions, she always wears a black tunic, hood with a pronounced visor that covers her body and face, as well as dark sunglasses and black gloves that protect her hands from ultraviolet rays.