In The News

primer-impacto-univision

Fátima on Primer Impacto

Natalia Cruz

Natalia Cruz met Fatima Perez a little more than a decade ago in Connecticut. Fatima talked about trying to survive a strange disease, a disease that makes her vulnerable to the light of the sun.   The years have passed, and they met again in Miami.  Today Fatima is an activist who is seeking for ways to help those that are affected by this disease.

March 2017

despierta-america-univision

Fátima on Despierta América

Dr. Juan Rivera

Dr. Juan Rivera talked with Fátima, who lives with a rare disease called Xeroderma Pigmentosum. This disease doesn't let her be exposed to sunlight because it would burn her skin and cause other damages immediately.

March 2017

al-rojo-vivo-telemundo

Fátima on Al Rojo Vivo

Maria Celeste Arrarás

Fatima is a Dominican woman diagnosed with Xeroderma Pigmentosum. She is blind because of this disease.  She contacted a child who has the same disease to help him at home in Venezuela,.

May 2017

 

Part 1

https://www.youtube.com/watch?v=CoskV8xBCpU

Part 2

https://www.youtube.com/watch?v=HYTNCK2hWHY

Part 3

https://www.youtube.com/watch?v=qf14WasYmrM

lilian-mass

Children Of The Night: A New Awakening

Lilian Mass

This documentary is about children in Guatemala that live with Xeroderma Pigmentosum .

May 2017

 

Part 1

https://www.youtube.com/watch?v=4R3jKz0HLyw

Part 2

https://www.youtube.com/watch?v=3Rl6uQXrS0U

Part 3

https://www.youtube.com/watch?v=U3z_U5gGbjg

Analeh Alfaro

Fátima in "El Show de Analeh"

Analeh Alfaro

The story of Fatima and XP Grupo Luz de Esperanza is presented to create awareness about Xeroderma Pigmentosum.

April 2014

 

Part 1

https://www.youtube.com/watch?v=6v8IA4iHKu4

Part 2

https://www.youtube.com/watch?v=hTVpbTbVzmk

Part 3

https://www.youtube.com/watch?v=ac6CytR6qzk

news8

Fátima on News 8 WTNH

Jocelyn Maminta

Fátima talks about Xeroderma Pigmentosum to create awareness about this skin condition and how we can help.  Read the article here: Artículo de News 8

September 2015

special-books-by-special-kids-logo

Special Books by Special Kids

Chris Ulmer

Fatima Pérez shared her story with the popular host of You Tube Channel's "Special Books by Special Kids".

waterford-times

Overcoming Life Challenges

Fatima Perez learns to cope with rare disease

By Julie Wernau

Times Staff Writer, Waterford Times
published 7/7/2004

Waterford –“Fatima has the strength of Kateri,” said Cheryl Noga, owner of Yah-Ta-Hey art gallery in New London. Noga was referring to Kateri Tekakwitha, a blind woman in the 17th century known as the Lily of the Mohawks who was orphaned and disfigured after smallpox attacked her family.

In a home video, Fatima Perez is cocooned in five pounds of clothing. Undergarments, a heavy black cloak, hat, visor and poncho engulf her body covering her face, her eyes, and her scalp. Lastly, she slips into a pair of heavy black gloves as her friend, Jaely Leon, accompanies the woman who is blind into her apartment building elevator in Waterford. Perez was born with Xeroderma Pigmentosum (XP), a rare genetic disease marked by the body's inability to repair DNA damage from ultraviolet rays.

el-dia

Skin Disease Gives Waterford Woman A Mission

She aims to spread awareness to Spanish speakers

By Judy Benson

Day Staff Writer
published 19/10/2009

Waterford -Fatima Perez’s biggest challenge is also her main passion, and thanks to her persistence, her story will soon be told in her native country, the Dominican Republic.

Perez, 45, has a rare genetic disorder called Xeroderma Pigmentosum that leaves her highly sensitive to ultraviolet light and susceptible to skin cancer and other effects. As a child growing up on the tropical island, where few people – including her parents – understood the disease, she spent far too many hours in the sun, unprotected, and ultimately lost most of her eyesight and incurred severe skin damage.

camila-mendoza

A Light In The Middle Of The Shadow

Dominican Woman Shines Light In The Middle Of The Darkness

By Camila Mendoza

Writer / Anchor / Blogger
www.camilamendoza.com

Publication - Diario Las Americas
Edition - New York, Thursday, March 30, 2017
Photographer: Alvaro Mata

Fatima Perez promotes self-improvement through XP Grupo Luz de Esperanza (XP Light of Hope Group). This organization seeks to raise awareness about the rare, strange disease that she lives with.

Fatima Perez dresses every morning with almost 5 pounds of clothes. No matter the climate conditions, she always wears a black tunic, hood with a pronounced visor that covers her body and face, as well as dark sunglasses and black gloves that protect her hands from ultraviolet rays.