XP FRIENDS

Katherine’s Story: My name is Ruth Ortiz. I am a mother of Dominican origin and I want to tell you a little bit about my beloved daughter, Katherine Maciel Ortiz. She suffers from a terrible disease called Xeroderma Pigmentosum (XP). READ MORE…Charina’s Story: My name is Charina Marte. I live in La Romana, Dominican Republic. I was diagnosed with the rare skin disease of Xeroderma Pigmentosum when I was six months of age. I am 21 years old and living my life with this severe condition has not been easy. It is extremely difficult for a person with Xeroderma Pigmentosum to live in the Dominican Republic. The tropical sun of my country is very strong. READ MORE…

Susana’s Story: My name is Susana Herrero Molina. I am 30 years of age. I live in Zaragoza, Spain. I developed the disease of Xeroderma Pigmentosum at four years of age. My life with Xeroderma Pigmentosum has not been easy. It limits everything that I can do, so I cannot have the normal life I would like to experience. READ MORE…